Perspectives of adolescents with disabilities and their parents regarding autonomous decision-making and self-determination

Citation:

Tamar Taub and Werner, Shirli . 2023. “Perspectives Of Adolescents With Disabilities And Their Parents Regarding Autonomous Decision-Making And Self-Determination”. Research In Developmental Disabilities, 136. doi:10.1016/j.ridd.2023.104442.

Abstract:

Background: Parents’ promotion of autonomous decision-making (PADM) is essential for adolescents with disabilities and constitutes the basis for maturation of self-determination (SD). SD develops based on adolescents’ capacities and the opportunities offered to them at home and at school, to make personal decisions regarding their life. Aim: Examine the associations between the PADM and SD of adolescents with disabilities from their own perspective and that of their parents. Method: Sixty-nine adolescents with disabilities and one of their parents completed a self-report questionnaire including PADM and SD scales. Outcomes: The findings showed associations between parents’ and adolescents’ reports of PADM, and opportunities for SD at home. PADM was associated with capacities for SD among adolescents. Gender differences were also apparent, with both adolescent girls and their parents reporting higher ratings of SD than adolescent boys. Conclusions: Parents who promote autonomous decision-making among their adolescent children with disabilities start a virtuous circle by offering greater opportunities for SD within the home. In turn, these adolescents rate their SD as higher, and communicate this perspective to their parents. Consequently, their parents offer them more opportunities for autonomous decision-making at home, thus enhancing their SD.

Notes:

Funding Information: This work was supported by The Shalem Foundation for Development of Services for People with Intellectual Disabilities in the Local Councils , The Minerva Center for Human Rights , Hebrew University of Jerusalem , Center for Disability Studies , Hebrew University of Jerusalem , Israel. Publisher Copyright: © 2023